Dear all
It is with a heavy heart that we write this blog update. For those of you who have not already heard, our gorgeous and courageous daughter passed away at 9:10 yesterday morning.
All 3 of the shunt operations she had on Friday failed due to clotting. On Saturday the team thought that they had spotted a reason for the third one closing and they did not think it was a clotting problem. They performed another catheter procedure to investigate it and discovered that it was another clot. They brought her down for a fourth operation and it seemed - just like all the others - to have worked. Unfortunately at approx 2:30 am Alannah had a cardiac arrest and required open heart massage to be resuscitated. At that stage, even before talking to the team, Tom and I decided that she had had enough and that we didn't want anything else to be done for her. Upon meeting the team, we all agreed that if her sats went down again, we would let her go. At 6am her sats went down drastically and we requested that her medication be turned off. Tom and I got to hold her and spend some time with her. At 9am we requested that the ventilator be turned off and at 9:10 she passed peacefully away.
We brought Alannah home with us and Mikey got to see her and spend some time with her. We are of course devastated but are taking comfort from little things. It's the next few days, weeks and months that will be the hardest - watching other little girls walk down the street with their family and knowing that we will never do that with Alannah but we know that we will get through this. Thank you all for your love, support and prayers over the last few months. We have been inspired by Alannah's spirit and fight. We will always be the parents to two children - Mikey and Alannah, both of whom make us so proud.
Alannah will be cremated tomorrow but will always be with us in our hearts.
Love
Eveline, Tom and Mikey xxx
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Eveline, Tom and Mikey, Grandparents and family
ReplyDeleteYou were all in my thoughts today as alway and I was really sorry I could not be there for you. Your brave little girl and angel will be the brightest star in the sky. I know you were very proud of her as she would have been of you. Her courage and your courage and strength will never be forgotton.
Love Monica
Well sweetheart, it's been 10 years since we held you in our arms. They've been quick and slow at the same time. You are as big a part of our family now as you were back then. You are never far from our thoughts. Grace wanted to have a special place for you and all our family members who have joined you in heaven. It's in the garden. A special sign is already there but we have to make it look nice and pretty for you. We're going to work on it this weekend and hope we do a good job. Thank you for looking after us all so well. We know you are always with us.
ReplyDeleteSending you all our love on your angel day. Love Mum, Dad, Mikey and Grace xxxxx